Some days are really dark being a momma to a child with Down syndrome, Congenital Cataracts, Congenital Heart Defects & a slew of other "special needs". Some days you are beyond frustrated because hours upon hours are spent in therapies and appointments. Some days you are so desperate to just hear the word "momma" instead of teaching how to sign. Some days you are jealous of other kids lapping your little one in milestones and accomplishments. Some days tracing the scars of their many surgeries, almost chokes you in fear like the days they happened. Some days you can't believe the ugly in the world when people say/write/think; "Why didn't she abort", "Down syndrome babies are a drain on our taxes" or "Their lives are useless." Some days are thankfully just that...Some days. Most days are filled with so much happiness because of contagious laughter. Most days are filled with pride at the determination in accomplishing everyday challenges. Most days are drenched in joy because what really matters is what is being presented. Most days are filled with such a deep thanks because your child survived and is showing you and others just how much purpose their lives hold.
Most days are filled with nothing but gratitude because you realize most days trump some days. And some days make most days that much sweeter.
These pictures showed up for me on a day when I really, really, needed some sunshine in my heart after getting some awfully sad news about a friend's health.
Tara is a quirky writer, #hashtagjunkie, fan of inclusion, adoring/annoyed wife, minivan momma to 3 hooligans, one who just happens to have extraordinary needs and proudly runs a non-profit called Happy Soul Project, that celebrates the beauty in differences.
Inspired by her daughter Pip, Tara has become a passionate Advocate, who loudly preaches the importance of representation & fights for Disability Rights. She’s obsessed with tacos & chocolate, is in the process of building an accessible home for her child, has given a Ted Talk and oddly is a killer nickname giver.
Despite the many challenges life seems to throw at her, Tara lives with an attitude of thankfulness, refusing to sink despite the struggles & narrates her experiences from a momma’s heart.
5 Comments
Cutest.Pictures.EVAR!
ReplyDeleteThese pictures showed up for me on a day when I really, really, needed some sunshine in my heart after getting some awfully sad news about a friend's health.
Thank you for sharing them <3
Wow! You couldn't have said it any better. I love my most days and wouldn't have it any other way!! Love the pic, she is beautiful!!! Blessings!
ReplyDelete1. Pip is absolutely adorable!!
ReplyDelete2. Where did you get the shirt? my son was born with a CHD and I would love to get him one
This post was just beautiful. Your children are so lucky to have you as their mom. And that Pip is just adorable!
ReplyDeleteWhat an angel. Adorable beyond words. These pics made me smile. !!!
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