So, last week Reid had a little miracle & now I’m wondering if I ask for another am I being greedy...Her heart healing has been such a relief...This mumma bear can now sleep without worrying every second, that every little noise, is my baby girl going into heart failure...I am sooo thankful & hopeful & don’t want to bother people but it’s only for a few more weeks, so I’m going to...

Reid's eye surgery is scheduled for Jan 25th...So, until then get out those wishbones, get on your knees, send out your thoughts & polish up any lucky horseshoes...It can't hurt right? To wish or hope that her eyes can be healed too...If anything all that positive energy can help in the surgery & recovery afterwards....

If her eyes don’t heal we are in for a long road of eye surgeries, contacts, glasses & patches...The eye specialist actually looked at me and said, "You better get use to seeing me, we have a long road ahead of us, it's going to be like we're married how much we'll see each other"...Bloody hell, having one husband is enough thanks...So, for my sanity alone I'm praying her eyes have their own miracle...
 
My poor baby girl after the surgery, at 5 weeks old, will have to have patches over her eyes...Her beautiful, unique eyes...Did you know babies born with Down Syndrome can have “pinwheels”, little white flecks in their irises called Brushfield spots? So, Reid’s gorgeous baby blues look like she has specks of stars in them...
 
 
They are beautiful & I truly am going to miss seeing them when/if they are covered in patches...The doc wants her to wear these patches now before the surgery so that she doesn’t learn to see out of one eye...

Impossible to keep on so I’ve been pulling her little hat down over her eyes & it seems to do the trick & the doc okayed it...Plus, she seems to sleep an extraordinary amount so her little peepers are always closed...


I've been trying to look at her eyes & take as many pictures as I can now to remember what they looked like before the surgery...I'm also trying not to freak out about the fact that they will be putting out my tiny, infant daughter & the risks associated with that...

In the past week I've been contacted by other families who have children with Down Syndrome- their emails & messages have been inspiring & encouraged me to the point where I know Craig & I can do this...We can be the mum & dad, Reid needs, deserves & has to have...I've also realized in researching & talking with the specialist that complications with her heart & eyes could have been so much worst & I'm thankful for what we are now dealing with...However, I want every mumma out there- Dad too if you're reading this to hug your little girl or boy & be thankful for what you've been given...A healthy baby at this point is like gold & I never realized that when I had Noal...Yes, I was thankful for a healthy baby boy, but I never took the time to really understand, nor could I truly until now, know what it is like to not have a healthy newborn...We've seen unbelievable things in the last few weeks at all the different hospitals & doctors offices...My heart broke seeing just how unhealthy some of these little children can be...Yet, I also found strength in seeing the determination & love their parents seemed to carry for them...Be thankful friends...


 

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