tag:blogger.com,1999:blog-818973399306650502.post4483404729112282141..comments2023-12-21T05:46:01.833-05:00Comments on Happy Soul Project: Finding Joy Each Day ~ Each Step ~ Each DanceHappy Soul Projecthttp://www.blogger.com/profile/17653500216357181319noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-818973399306650502.post-32306121050140861642014-11-15T03:19:19.367-05:002014-11-15T03:19:19.367-05:00Laura, i have too. High, then moderate, then low, ...Laura, i have too. High, then moderate, then low, back up to moderate.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-3438733388357524422014-03-05T22:52:59.777-05:002014-03-05T22:52:59.777-05:00We've been told Little Man was high functionin...We've been told Little Man was high functioning, then low functioning, then moderately impaired - back to moderate to severe. St. Patty's Day he will be 13 yrs old when they gave him 7-10 days at birth. Unfortunately, while celebrating this milestone with him and the family, I also get to spend part of the day in his Individualized Education Plan Conference. I never leave these meetings without tears, as it is so hard to hear all about what he isn't, what he can't do, where he should be to where he is...I relish the rest of the year when he can be my Little Man and not a progress meter on his birthday! There are days I am actually jealous of his ability to just be happy. Love my Little Man.Anonymoushttps://www.blogger.com/profile/00859135749071429875noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-9981196046758722232013-07-11T20:31:52.618-04:002013-07-11T20:31:52.618-04:00Mardra thank you for sharing & your comment......Mardra thank you for sharing & your comment.... I hope for many more moments like this too!!! My eyes I promise will always be wide open.... Happy Soul Projecthttps://www.blogger.com/profile/17653500216357181319noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-82026604742255477092013-07-09T01:24:59.721-04:002013-07-09T01:24:59.721-04:00I could not agree more with this. Hanging out wit...I could not agree more with this. Hanging out with other families and joining the online community was a big thing for me as well. Pip will definitely know she is loved, and I think real, deep, fulfilled happiness is all any of us could ever ask for. Jisunhttp://www.kimchilatkes.comnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-52150703736887292472013-07-08T19:11:05.721-04:002013-07-08T19:11:05.721-04:00As a parent with an adult child with Down syndrome...As a parent with an adult child with Down syndrome this post makes me emotional as well.<br />Thank you for sharing it and seeing the beauty of that moment and here's to the many other lovely moments that will come to you if you keep your eyes open :)<br />Best Wishes, <br />Mardra<br /> <br />Mardrahttp://www.grownupsanddowns.comnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-38817598504923223022013-07-04T15:12:59.884-04:002013-07-04T15:12:59.884-04:00Agreed!!!!Agreed!!!!Happy Soul Projecthttps://www.blogger.com/profile/17653500216357181319noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-10403468794945679962013-07-04T11:12:33.647-04:002013-07-04T11:12:33.647-04:00They say to take it one day at the time... I say o...They say to take it one day at the time... I say ok, but we are going to enjoy every single day of them!... <br /><br />Down syndrome doesn't define our kids neither our families, our kids redefine everyday what down syndrome is about!estebanfhttps://www.blogger.com/profile/06292752669819922708noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-78103928180450614042013-07-04T10:28:24.691-04:002013-07-04T10:28:24.691-04:00Thanks Nicole- So happy to hear this!!!! Gives so ...Thanks Nicole- So happy to hear this!!!! Gives so much purpose to Happy Soul Project when I read something like this...so THANK YOU...Happy Soul Projecthttps://www.blogger.com/profile/17653500216357181319noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-73736099213550822132013-07-04T10:27:41.509-04:002013-07-04T10:27:41.509-04:00I too Alison believe it all happens for a reason- ...I too Alison believe it all happens for a reason- Every moment....And that's exactly what I'm trying to do- Be open to it all...thanks for your comment...It's beautiful...Happy Soul Projecthttps://www.blogger.com/profile/17653500216357181319noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-28763744036259416852013-07-04T10:26:23.287-04:002013-07-04T10:26:23.287-04:00Love you...Love you...Happy Soul Projecthttps://www.blogger.com/profile/17653500216357181319noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-57546225569332808642013-07-04T10:26:09.190-04:002013-07-04T10:26:09.190-04:00It is amazing eh- how it touches you? Thanks for s...It is amazing eh- how it touches you? Thanks for sharing...Happy Soul Projecthttps://www.blogger.com/profile/17653500216357181319noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-73239847083818353782013-07-03T15:33:07.435-04:002013-07-03T15:33:07.435-04:00Nicole Godin Your writing is so heartfelt, beautif...Nicole Godin Your writing is so heartfelt, beautiful and uplifting! I look forward to your posts, because no matter what kind of day I have had, good or bad I always feel lighter after reading... So thank you for that 😊Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-48561397977668663232013-07-03T10:04:58.965-04:002013-07-03T10:04:58.965-04:00What a wonderful post and all the replies. I do tr...What a wonderful post and all the replies. I do truly believe that things happen for a purpose, if we can just be open to the possibilities, find out what is ours to do, and then let it unfold. After all, deep down, Pip is just your and Craig's loving and much loved daughter (and sister to Noal). There will be difficult things on the way and I think it is good to share those times too. (like the other day) It's also very helpful to others. But whatever happens, we always have to choose the best way to handle things and to accept that our children have their own way and perspective on handling things too. Lots of love to you all, and all who are sharing this.Alison Wormaldhttps://www.blogger.com/profile/16915283315111135444noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-2395251347235371372013-07-03T07:47:26.838-04:002013-07-03T07:47:26.838-04:00What a beautiful experience for you and Craig. See...What a beautiful experience for you and Craig. See---things do happen for a reason! JillAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-64257308912405855802013-07-02T22:52:36.114-04:002013-07-02T22:52:36.114-04:00How true this is. We are all part of the human spe...How true this is. We are all part of the human spectrum.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-52780654744588473512013-07-02T22:09:45.567-04:002013-07-02T22:09:45.567-04:00Yep, you were in the right spot at the right time!...Yep, you were in the right spot at the right time! In the end where she falls on that "spectrum" really doesn't matter as you'll love her more each and every day regardless. I always wondered where my Brandon would fall on the "spectrum" too. At 19, he's quite happy with who he is and he has a darn good life and is loved way more than he'll ever know. (He loves unconditionally in return and gives hugs and tells me "I love you too" every day!) He seems to have no clue that he has DS or that he's "different". He's always been healthy other than the chronic ear infections and usual "virus of the week" when he was younger but rarely gets sick at all anymore. My hopes for him continue to be that he is happy and healthy and isn't that what we want for all our kiddos? In spite of having those sad times, I still do on occasion, you'll find that you have the best of both worlds with your babies and life, and people, are good! I enjoy following your journey with your sweet Pip! Keep sharing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-36887127455596040282013-07-02T21:39:21.609-04:002013-07-02T21:39:21.609-04:00Each and every time I read your blog, I shed a tea...Each and every time I read your blog, I shed a tear, sometimes one, sometimes many... Tonight took the cake...so beautifully written xoxoMulsnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-29683267002073536892013-07-02T21:33:18.431-04:002013-07-02T21:33:18.431-04:00Wow, what an amazing moment to have experienced! ...Wow, what an amazing moment to have experienced! When Samantha was 1, she and I attended our local ARC picnic. I wasn't sure what to expect, had never met adults with Down syndrome before. And I was so happy we went. It was just what I needed, and I bawled the whole way home, so happy to have met so many amazing people.Beccahttps://www.blogger.com/profile/14963099760885760598noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-58668729104140907452013-07-02T21:20:33.854-04:002013-07-02T21:20:33.854-04:00Here's the thing: we ALL fall on different pl...Here's the thing: we ALL fall on different places on the spectrum of life, regardless of whether we have a disability or not. It is hard to imagine the future and try to figure out where your kiddo will be, especially when she is still a baby. I won't say that I didn't do that with Owen because I know that I did. But at some point, probably around 8 months, I just stopped trying to fast forward to the future. I began hanging out with other families of littles with Ds near Owen's age and it was great to see all them interact and be their own little selves. I learned to just let Owen be because he needed to find his own way. Pip will find hers. You are giving her experiences that will shape her existence. And no matter where she falls on that spectrum, she will do the best that she is capable of doing and that's all you can ask for.Anonymoushttps://www.blogger.com/profile/17913754866057778005noreply@blogger.com