tag:blogger.com,1999:blog-818973399306650502.post3304649327269768480..comments2023-12-21T05:46:01.833-05:00Comments on Happy Soul Project: Unless you've been there....Happy Soul Projecthttp://www.blogger.com/profile/17653500216357181319noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-818973399306650502.post-19633067984068079032016-04-07T11:20:07.585-04:002016-04-07T11:20:07.585-04:00Well said. So grateful the Internet makes it possi...Well said. So grateful the Internet makes it possible to find people who get it. I don't know why it gets more scary each time. We are currently putting off the Fontan....mostly because she is doing so well now but she doesn't recover well. We nearly lost her last time. I can't do it again until I have no other option. I am too scared. Nanette of HeartBabyHomehttp://www.heartbabyhome.comnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-60817045832338953822015-09-10T23:58:07.620-04:002015-09-10T23:58:07.620-04:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-23222736980184498042015-09-10T22:32:08.776-04:002015-09-10T22:32:08.776-04:00Oh my, you hit the nail on the head. We had our th...Oh my, you hit the nail on the head. We had our third surgery in July. Ella has had heart, eyes, ears, tonsils, adenoids, gi scopes. Her last surgery was tonsils and tubes, by far one of the easiest surgeries we were faced with. But at two, she was aware. I agree the leading her to surgery was awful. The screaming and not wanting to be touched. It hurt me so. I do remember however the snuggles. I held her all afternoon. She on and off slept. We whispered and played. And when it was all said and done she won't remember it. Hugs to you mama, especially 34 weeks pregnant. Thanks for sharing! We love your blog and pip!Amandanoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-53162325917779455522015-09-10T21:43:48.993-04:002015-09-10T21:43:48.993-04:00Bless you and your sweet family. Pip is such a Ble...Bless you and your sweet family. Pip is such a Blessing. Faithful, prayerful hugs sent. Germaineon a good dayhttps://www.blogger.com/profile/18127482797600587047noreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-75998464238741078002015-09-10T20:55:51.829-04:002015-09-10T20:55:51.829-04:00So happy everything went well and your little girl...So happy everything went well and your little girl is back home with you. This post brought me back to the morning of Hannah's surgery when she fell asleep in my arms and a total stranger took her away from me, praying that she would wake up again Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-818973399306650502.post-67993782572487684082015-09-10T20:47:47.532-04:002015-09-10T20:47:47.532-04:00Tara & Pip - this won't be your last. At ...Tara & Pip - this won't be your last. At 14, Little Man has had 17! - yes, that's right, 17! surgeries...some routine, some like his own open heart surgery, not so routine. I can tell you how many times in his 14 yrs he's coded on me. 31 with his heart in 2001, 3 with the sepsis in 2014, 5 with the pneumonia in 2009, 1 with the tonsils and adnoids in 2005, 4 with the RSV 9/2001 and 4 more with the RSV AGAIN 12/2001...there is no better feeling than them coming out, no worse feeling than them going under - it NEVER gets easier - I cry as hard (or harder) today than the very first one 6/2001 with his heart. I can only hope that you cherish what we have, and have that one nurse/child life/social worker - who says "No, it's OK to cry - it doesn't matter how many times - it's not something we'll ever be used to" and you are a good Mom - if you weren't you would give into your fear instead of doing right by them. I wish you both well! Hugs from Been There - Done That - Yea me too!Anonymoushttps://www.blogger.com/profile/00859135749071429875noreply@blogger.com