Inclusion for her & for me...




Dear Mommas,

Once upon a time I had a baby girl named Pip who came with a ridiculous amount of extraordinary needs. And while I couldn't possibly love her more, at times I still grieve her differences.


Obviously in situations like surgeries or medical challenges, I loath the disadvantages & complications her differences bring.



But in situations like today for example, simply another kid's birthday party. I can find myself in pockets of sadness wishing she got to experience it like everybody else. Heck, wishing I got to experience it like other parents. 



This afternoon, both Noal & Pip went to a school friend's 6th birthday. 



I barely even saw Noal, because he was so wrapped up in his friends. 

[She made this face the entire 2 minutes & 37 seconds it took him to get her mask on.]


With Pip however, just her gear alone could tie ya down. 


I came with her Dexom & Omnipod Insulin pump.
I had snacks for lows & test strips for poking. 
I brought pullups & baby wipes because we are no where near potty training. 



And then Pip brought with her.


An ear infection. 
A few meltdowns including when she wasn't allowed to open the birthday boy's presents.
And of course so much sass. 



But, before I could even allow a droplet of grief to cloud our day, another momma shown me extreme kindness just by reaching out. 


  • She kindly got Pip her own gluten free pizza & treats.
  • And she told me how much her son LOVES being in Pip's class & that she was the first person he said he wanted to invite to his party. 


And somehow those silly thoughts I was having about wishing she got to experience things like everybody else. 



They went away. 



She was experiencing it, exactly as she was meant to. 


Friends, listen. Mommahood is hard. And as a special needs momma or whatever you want to call me or us, we take on that & much more. We are utterly exhausted. We are burnt out. We are frustrated and scared. And a lot of the time we feel very alone. 


Our paths are so different that it's a rather lonely road sometimes. 


But when someone extends kindness, thinks outside the box and embraces your child's differences.


That is inclusion. 


For my daughter and for me.


And I wish those reading this spread just that. 






[Pip talking about her day]

What I want my Future Sister-In-Law to know...



My brother said it best, when I heard him tell his fiancé, "You're literally the prettiest woman I've ever seen."


And I can't help but agree.


My future-sister-in-law, Gabrielle is stunning.



Like flawlessly. 


And no matter what, you can't help but feel frumpy anywhere within her proximity.  


Not to mention she saw me and my life, exactly as it is. 


With 3 young kids, one with extraordinary needs, a house full-of-family & me sporting makeup for 2, heck maybe 3, days in a row. 


She saw me wearing a romper I picked up from Giant Tiger, rocking legs in desperate need of a shave.


She got to see an extra level of tiredness, because not only was I staying up-mega-late to play games with everyone, Pip picked up an ear infection, her #T1D was a rollercoaster of lows & my darling 6 year old, 27 pieces of Littles Pet Shop & 12 Beanie Boos were bunking with me in bed.


To really round out the hot-mess-of-a-woman I am, the entire time she was here, I proudly ate like a God-Damn-Teenage-Queen. 


Sending my dad on coffee runs which really meant a Tim's brekki: Grilled Bacon Wrap with extra sauce, XL Dark Roast & a honey crueler donut instead of a hashbrown. You're welcome. To ordering pizza, Greek food, & of course our traditional celebratory Red Lobster.


She got to see a lot of my upper lip from smiling so much, my sillier side & watched as my hand slapped my thighs numerous times because I was laughing so freaking much. 


And whenever the kids pulled or tugged at me, it exposed things like my double-ponch, I'm sure at quite the opposite of flattering angles. 


Add in changing dirty diapers, doing dishes & picking up the dog's shite before each backyard experience. 


And she got me.


She saw me as I am.


And my hope is, she at least saw a loved woman.


A gal who was cherished by her husband, adored by her kids & loved by her parents & brother. And that by marrying into our family, she at least knows she will be as such...







#youwillbeloved
#iamaflyingsquirrel 



Can't STOP Friendship #differentisbeautiful


Today, my sweet Pip had somewhat of a play date. At her old EA's house with her daughters, whom Pip adores. 



We've been talking about it for days. And this morning, she excitedly picked out a swim suit & snack to sling along in her school backpack. 


As I went to knock on the front door, she patted her chest & said, "No momma, me".


So, I let Miss Independence knock alone. And step inside. While, I quietly watched as she gave her EA a giant-choke-hold-kinda-hug. 


Then I cringed & smiled at the same time, cause she tried to hurry me along. Telling me, "Bye. Bye," as one hand shooed me away & the other took the hand of one of the daughter's, she's affectionately nicknamed "KiKi". 


And then she had the best few hours, ever...



She swam and she was silly. She played baby dolls & danced to all her favourite toons. She showed off all her new words & got to learn how to play dress up with older girls, instead of her brothers. 


She played with her friends. And she felt loved and included. 


Down syndrome you can't stop friendships.
Type 1 Diabetes nor can you. 
Celiac Disease, you are a PAIN-IN-THE-ARSE, 
and everything else, y'all don't make things easy. 


But, let today show, for the record, mark it down in the history books. 


That NONE OF THOSE THINGS. 


NO diagnosis or disability can stop people from connecting.





And that right there, is a powerful thing. 


I am, so thankful for that today....