"Beat It"


I can't even describe the whirlwind my little family has been on the past few days, weeks, okay months really, but with anything there is most definitely a balance of good times and crappy moments...


Take today.


I had to lug Noal to some of Pip's appointments, usually I try to book them for when he is in daycare but some days that just doesn't happen...But I was prepared; a bag of snacks, my phone fully charged for a YouTube video if needed, toys and my patience fully charged and ready to go.


Two hours in, a few major toddler tantis, making a "fishing pole" out of a measuring tape and latex glove, snacks and 3 granola bars demolished and my patience now patiently waiting for a gin & tonic.


But it was during Pip's second appointment where I had to hold her down while two nurses poked both of her arms in search of her little veins, without any luck that I just about lost it...She was desperately struggling to be free, crying harder than I've ever heard her, saying "mum mum mum" over and over and her one little arm was already starting to bruise, when Noal turned his "fishing pole" into a sword and said, "That's enough, you ladies leave my sista alone". 


When they wouldn't stop because they finally found a vein, Noal looked at me and said, "Momma tell them to beat it"...


In that moment when I was so close to tears myself, so jealous of others whose day revolved around which park to go to and not which arm to let a nurse poke, when I was so frustrated about how our day was unfolding, my little man showed his sweet, protective heart and made me realize it's all okay. 


This is all part of our story...The endless appointments...The dreaded blood work...The heart defects, vision problems, Hypotonia and now the news that Pip has Hypothyroidism - Resulting in medication and continual blood work.


But it's still all okay.


Sometimes it all just feels a bit much, and that she was the unfortunate one who got all the other health complications associated with Down syndrome and just can't catch a break. Her vision problems are consuming in itself, her heart surgery just about did me in and now while this is definitely treatable it's still a serious thing.


At times, like Noal I wish I could just take her away, tell all the nurses and doctors and test to "beat it"....



But it's all still okay - She's here, glasses, patches, scars & pills and really that's all that matters...

Huffington Post interviewed me in my underware....Bloody hell...


As I sit down to try and write about the whirlwind of the last few weeks, I keep coming back to the fact that I have to always be honest with y'all...You are the ones that have walked this journey with me thus far - Seen my excitement when doing newspaper interviews, voted to get Pip a billboard at one of the busiest intersections in Toronto, tried to rally the Ellen show to get Pip shaking her booty & withstood all my tears when talking about my girl, be that good or bad...


So I have to be honest with you - It's only fair...


I wore no pants yesterday while getting interviewed by the Huffington Post...


Yep I wrote that write and you may not be able to watch the following video the same way every again - But honesty wins right?




Yesterday a goal of mine since I was a journalism student became a reality...A daydream that replayed over and over while I worked at numerous newspapers played out - What a feeling that is...


An article I wrote was published on the Huffington Post and that alone, made me byline giddy...Add in the proud momma stuff and the opportunity to share Happy Soul Project and the Special Olympics #takeastand campaign to a wider audience and well, you got a pretty, freaking amazing day...


Then today I woke up and realized on the Huff Post page alone over 50,000 people have liked my article..MY article...MY words...My heart...Sweet Jesus...


But what really floored me & I guess literally took the pants off me, was being asked to talk on Huff Post Live...


Let's just run down my thought process or priorities here before you judge how this all came to be:

  • I had to get Noal to a friend's for the interview or else it would be total madness - He'd take over doing his rendition of What Does the Fox Say? or better yet he'd tell the interviewer his new fav thing to bust out with, "he has a penis"....So ya, priority one Noal outta here.
  • If you know me at all, you know I run late for everything - So after dropping Noal off I was in go mode, letting Pip destroy the playroom while I, all hot & flustered tried to get ready. I mean what in bloody hell, does one wear when getting interviewed by the media giant Huffington Post? So clothes everywhere, Pip somewhere, makeup starting to get melty in the heat and the only sensible solution was to take my pants off...I had time.
  • Next priority was to get Pip's pigtails in...It's her signature look these days because there is not much else to do with the long rat-tail growing awkwardly down her neck...
  • And then when I'm struggling to put in the second pigtail the damn Skype makes it gurgly little ring tone and my heart stops or drops or just doesn't remember to beat..I'm sitting on the floor and have to scootch up in a crawl-like-way with Pip on my lap to answer it...
  • It's the Huff Post Live audio department calling early - Bloody Awesome - I have to sit & listen in to the show live with the fear of any and everything in me thinking that:
      • A - The entire Huff Post Live newsroom can see my gonch - Sweet Jesus, what kind of underwear am I even wearing? 
      • B - What the hell am I going to do if they ask to see Pip crawl or do something? 
      • C- Maybe if I pull my shirt down lower it will seem like this top is a dress - dammit now I have too much cleavage showing but don't know how to pull it back up - dammit, dammit, dammit...
      • C - Is this really bloody hell happening?
  • At this point Pip is starting to get real antsy - grabbing at me, whipping her glasses off, me saving them like a skilled MLB player because if they fall to the floor there is no way this big girl can bend down to get them...
  • And then before I can put my oops-it-disconnected-try-calling-back-put-pants-on-in-2-seconds plan into play, the interview starts...
  • And what I thought would be a quick question or two turned into a 12 minute interview one on one with the host...A 12 minute interview in which I was begging God/Fate/Karma whomever to let me get through without showing the world totally what they don't need to see...A 12 minute interview in which all I could think was how do I possibly get out of it, if I'm asked to put Pip down and get her to crawl or dance...A 12 minute interview in which Pip flung her glasses and I let them drop trying to play if off with a "she's sassy line" knowing I couldn't even attempt to get them...A 12 minute interview that ended yet I still sat there for an extra 5 minutes in case somehow, someway my camera was still on....A 12 minutes interview I will never, ever forget...



I get emotional watching this interview, but the overwhelming desire to laugh at certain points because I can tell when I'm thinking holy shite I'm not wearing any pants, really makes this unforgettable...

Hope I didn't ruin it for you...Hope you can watch this clip below and remember #differentisbeautiful, we should think of people first and disabilities second and #takeastand with me & the Special Olympics....

Who am I kidding right? And who bloody does this - I mean a once in a lifetime opportunity and I do it like this...

So, Ellen if you have us on your show I promise both Pip and I will have pants on, Noal you can never tell, but here's hoping...







P.S- After ABC News did an interview & I gotta say I felt much more comfortable zipped in safely...To see that interview click HERE